Six months have passed since I have been an active blogger.
Six months have passed since my life has forever changed. Since my family's life has forever changed.
How do I express what is on my heart and in my mind? Do I keep on blogging? Or not? Do I confine my scattered thoughts and emotions to my personal journal, there to shock, perplex or relieve only myself?
In the previous six months . . .
My daughter has seen more than a dozen doctors. Probably more than two dozen. Her symptoms have perplexed most of them.
My daughter has recently received a very rare genetics diagnosis. It doesn't even comprise a syndrome. Little is known about it. The doctors have told us what they can.
I have met some very good and caring doctors. And nurses.
My daughter has experienced a 12 day hospital stay. And I stayed with her.
I have learned so much about medicine, treatments, medical equipment, and my daughter's case in particular that I have confused both doctors and nurses into thinking I am a Registered Nurse. I am not.
We continue to search for answers to help my daughter. Yet I now realize that the answers will not come quickly, nor easily.
I realize . . .
That my daughter needs me so very much.
And that I love her enough to do anything for her.
That sleep truly is optional. Yet it is not completely. Sooner or later some of those sleepless nights must be made up for.
Food is optional sometimes. Yet when sleep becomes optional, a hot cup of Earl Grey tea is not.
That I am a better mother than I knew.
That God has been so very good to place me where He has, and He has placed so many of the people I need into my path right now. And I am grateful for my online friendships. Your prayer support and encouragement have meant the world to me. Blessings to you!